Still sick

I wanted to say thanks again for all the help with my fundraising. I really appreciate the donations & attention the campaign is getting.

The last week has been pretty rough. I’m still getting low grade fevers most nights, and I am very fatigued. I’ve spent most of the last week in bed, and spent a lot of time at the hospital. I’ve lost the little bit of strength that I was starting to gain.

I had an Endoscopy on Monday. Everything looked normal, unfortunately. I was hoping that the hourglass section of my throat (that was discovered during a swallow test) could be stretched. The surgeon’s guess is that it’s a muscular issue. Next I need to have a test done which measures the muscle pressure when I swallow. They will need to stick a tube up my nose and down into my stomach. I am not looking forward to it, but I am sick of choking. I had Photopheresis treatment Tuesday and Wednesday, and I now begin getting those treatments once each month (still 2 days per treatment).

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