Calm before the storm

Short version: Yesterday was my last day of chemo (for now). For the next 2 weeks, I go to the hospital for blood work and/or transfusions every Monday, Wednesday and Friday. Most likely we will not have any updates on the disease for a couple weeks.

Round 1 of chemo (day 5 of 5) finished yesterday. I feel pretty good so far, the chemo doesn’t normally affect how I feel. Over the next few days my white blood cell, hemoglobin and platelet counts will continue to fall. The blood work results will determine whether or not I have to stay for one or more transfusions. They can potentially be very long days.

I received my breathing machine on Friday. It’s very small and quiet, and I am enjoying it a lot. It includes a humidifier. The chemo dries the body out something horrible.

Going forward, I will have blood drawn every Monday, Wednesday and Friday. The results of the blood work will determine if I will need to stay for blood products that day. I could receive multiple transfusions, which can not be run at the same time. Low hemoglobin will give me fatigue, headaches and take my breath away. Low platelets will give me headaches, lack of clotting, mouth sores, mouth and nose bleeding, and could kill me if I fall (internal bleeding).

How can you help? Things are very overwhelming as I am trying to catch up with friends and family and prepare for whatever happens next.

I now have a form to the right side of the blog titled “Death Notification”. If you want to be notified upon my death, please fill it out. Hopefully this is not for many years to come (of course) :)

You can subscribe to the blog to get updates via email. There is a form to your right if you’d like to subscribe.

I now have an Amazon wish list. There is a button for it at the top of the blog.

We can always use help with the yard. Fall’s leaves have yet to be raked.

We can always use food, especially prepared food. I can’t prepare meals anymore and my husband is being pulled in too many directions.

If you have any recommendations on things that you think would help us out, I am all ears.

Thanks again for everything :)

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