Archive for the ‘ Chemotherapy ’ Category

Chemo – round 8 / CBC / Platelets / Dr Appt

Chemo day 5 of 5

I felt pretty nauseous when I got to the hospital for treatment. I vomited as soon as they got me into my room. I had to ask for additional anti-nausea medication prior to leaving the hospital that night, in hopes that it would keep me from vomiting anymore. Thankfully it did the trick. This was my last day getting treatment at Immanuel Medical Center. I began getting treatment at UNMC the following Monday. I will miss the Immanuel Oncology nurses tremendously. They have been with me every step of the way through things, and have become family. There were a few tears shed saying goodbyes this day.

I had a doctor appointment at 2:00 this day. Since I was getting treatment in the hospital at that time, the doctors said they would visit me in my room for that last appointment. However, that did not happen. My doctors basically blew me off for my last appointment with them, then took about 2 hours to enter my anti-nausea meds into the system later in the evening so that I could get them before going home. Not cool!

I was too sick to write down my CBC results, so I will need to call the Immanuel nurses to get those numbers.

Chemo – round 8

Chemo day 4 of 5

I wasn’t able to do much of anything but sleep by this time. I woke up in the middle of the night to vomit, which is always fun.

Chemo – round 8 / CBC / Platelets

White blood cells: 0.6

Hemoglobin: 8.6

Platelets: 3 (12 after getting platelets)

Absolute Neutrophil Count (ANC): 0.5

 

Chemo day 3 of 5

Chemo – round 8

Chemo day 2 of 5

I went home, ate a little something, slept, woke up, and vomited. I slept most of the following day. The nurses were about to send the police to the house to check on me because I wasn’t answering my phone. Thankfully they got in touch with my husband, and were able to start day 3 of chemo later in the day.

 

 

Chemo – round 8 / CBC / Muga Scan / Platelets

White blood cells: 0.9

Hemoglobin: 9.0

Platelets: 9 (9 after getting platelets)

Absolute Neutrophil Count (ANC): 0.6

 

Chemo day 1 of 5

 

This round of chemo kicked my ass like no other. I was given 3 chemo drugs, one of which was actually a very pretty blue color, quite similar to my current hair color. Too bad it’s known as being one of the worst ones for nausea. All food lost its flavor, and I was very sick to my stomach all week. Needless to say I didn’t eat much, and lost about 5 lbs. I also slept a lot. Instead of getting 2 anti-nausea meds and steroids before chemo, I was only given 1 anti-nausea med. I think this had a lot to do with it wreaking havoc on my digestive system. For the first time in 8 rounds of chemo, the chemo itself actually made me vomit (3 times), which as I have mentioned I’m pretty phobic about. Not a fun week, but thanks to the ability to sleep like no other, I managed to get through it.

I also had a Muga Scan done on my heart to be sure it’s healthy enough for more chemo. I was told that my heart is good, but never received the actual results of the test.

 

Chemo drugs:

Mitoxantrone 16 mg in sodium chloride 0.9% chemo infusion (once per day for 5 days)

Etoposide 165 mg in Dextrose 5% DEHP Free (once per day for 5 days)

Cytarabine 1,640 mg in sodium chloride 0.9% chemo infusion (once per day for 5 days)

 

Chemo – round 7

Chemo Schedule:

Monday 10/20: am & pm dose

Wednesday 10/22: am & pm dose

Friday 10/24: am & pm dose

 

My nurse busted her ass to get me out of the hospital 12 hours after I went in for my chemo. I bought a new outfit almost a year ago (while I was inpatient), and this was possibly the only night I would have a chance to wear it out. After my chemo was done, I went straight to the club to meet up with some friends i hadn’t talked to in years. It was a good way to celebrate what will hopefully be the last of my chemo…although I have a feeling that a transplant will be recommended in the near future, introducing me to a new level of hell.

Chemo – round 7

Chemo Schedule:

Monday 10/20: am & pm dose

Wednesday 10/22: am & pm dose

Friday 10/24: am & pm dose

 

I spent another 17 hours at Immanuel Medical Center. Another long day. My digestive system is starting to feel the effects, with a lot of bloating, variable appetite, and that odd floaty feeling in my stomach. Chemo also dehydrates, which means constipation on top of all the other pleasantries.

Chemo – round 7

Chemo Schedule:

Monday 10/20: am & pm dose

Wednesday 10/22: am & pm dose

Friday 10/24: am & pm dose

 

I spent 17 hours at Immanuel Medical Center. Each dose of chemo only runs for about 3 hours. The 2nd dose must begin 8 hours after the first dose begins. Medication must be given before each dose (steroids, anti-nausea) to minimize risk of reactions. It’s amazing how inefficient this process is, and unnecessarily time-consuming for the patient.

My platelets were only at 24 when starting this round of chemo. I had to ask the doctor to arrange for platelet transfusions for next week. The last time this particular doctor got platelets in for me, I was not notified, and ended up spending an unscheduled 9 hours at the hospital the day the blood products expired. This was highly upsetting, as I told my doctors that was the one day that week I could not make it in. My mother and nephew arrived from 1,000 miles away that day, and I hadn’t seen them since shortly after being diagnosed (9 months). In turn, I was told that each of the 3 days I come to the hospital for blood draws per week that I should “just plan to stay for transfusions”. I spend a minimum of 5 hours per unit of transfusion at the hospital, usually with no food available. I may be crazy, but I think that is A LOT to ask of someone to prepare for, not even knowing if they will need to stay for an extended period…especially when you have the opportunity to give days of advance notice. I am not looking forward to all of the transfusions that come along with recuperating from chemo, or the arguments that I need to have with my doctor during my Monday appointment.

 

 

Chemo – round 6

Chemo Schedule:

Monday 7/14: am & pm dose

Wednesday 7/16: am & pm dose

Friday 7/18: am & pm dose

Chemo – round 6

Chemo Schedule:

Monday 7/14: am & pm dose

Wednesday 7/16: am & pm dose

Friday 7/18: am & pm dose