Archive for June 9th, 2018

Big changes: moving, treatment, everything

As usual, I am making this post much later than I wanted. I’ve had family & friends visiting a lot over the last few weeks, have been very sick, and have been inundated with appointments.

Treatment: I’ve gone through 3 rounds of IV chemo (5 days, 10 days, 5 days), and a few weeks of a chemo pill. I’ve had multiple injuries, infections, antibiotics, vomiting sessions…I’ll spare the rest of the fun details. The good news is that I appear to be cancer-free at the moment, though there are likely some “bad cells” hiding out somewhere. I begin a 4th round of 5-day IV chemo on the 18th. I’m also now on oxygen 24/7 after my lungs continued to get worse, partly due to more pneumonia.

After that week of IV chemo, we are moving back to my home town of Pittsburgh, PA! My husband and I are completely exhausted, and we just can’t do this anymore. We are slipping…missing meds, missing appointments, late to every appointment, and just completely unorganized and behind on everything. I have a small army of a family that can take many burdens away and allow us to focus on what is most important: healing our bodies and minds. Switching hospitals at this point in treatment with such a complicated history is a nightmare, but it will have to be worked out. Most likely, I will stay on some kind of regular IV chemo regimen to keep me in remission. I will continue to need treatment for the GVH (Graft vs Host) problems I have.

A huge thanks to my friends and family here in Omaha and in Pittsburgh. My family is trying to raise enough money to make this move happen. Once again, I ask that if you have the ability to make a donation, please do. There is a GoFundMe link at the top of each blog page. I have used prior donations for dental work and specialty lenses, but I really need help getting home within the next couple weeks. I am immensely grateful for everything that has been donated, and amazed at the amount that I have received. Eyes and teeth are very important!

I will post another update as soon as I am able to. In the meantime, stay frosty :)