Archive for April, 2017

Goodbye Salmonella, Hello Sclera Lenses – and cats

My fevers finally stopped a couple nights ago. I can now handle being awake after 6:00 pm without body aches. The abdoninal pain has stopped, but it will probably be awhile before things are back to normal. Things are quite manageable though when it comes to the digestive system. Now I just have to eat more and put some weight back on, which is difficult when you choke on everything.

My pulmonary doctor referred me to an allergist, and I had my first appointment on Monday. Sometimes the recipient of a Bone Marrow Transplant will experience their donor’s allergies. I had allergy tests done, which confirmed that this has happened to me. I am no longer allergic to ragweed and cockroaches. I am now allergic to one type of grass, several weeds…and cats. This is the worst possible news that I could have received. I am completely devasted. We have several cats and there is no way that I am rehoming any of them. They are my family. I now take liquid Zyrtec once a day. We’ll see how that goes. This might explain the chronic cough, runny nose and phlegm that I have had since 6 months after the transplant.

As always, things are bitter sweet. Thanks to the donations I’ve received, I was able to order my sclera lenses on Tuesday! They will take 7 to 10 days to make. It will be difficult getting used to them, but if I am to, they will be a game changer. No more eye drops every couple minutes while they’re in. I won’t be able to sleep in them, but I can wear them for extended periods of time while I’m awake. Thanks again for all the shares and donations!

This week coming up I am going to schedule a dental cleaning and x-rays. It will be nice to get my teeth taken care of.

Still sick

I wanted to say thanks again for all the help with my fundraising. I really appreciate the donations & attention the campaign is getting.

The last week has been pretty rough. I’m still getting low grade fevers most nights, and I am very fatigued. I’ve spent most of the last week in bed, and spent a lot of time at the hospital. I’ve lost the little bit of strength that I was starting to gain.

I had an Endoscopy on Monday. Everything looked normal, unfortunately. I was hoping that the hourglass section of my throat (that was discovered during a swallow test) could be stretched. The surgeon’s guess is that it’s a muscular issue. Next I need to have a test done which measures the muscle pressure when I swallow. They will need to stick a tube up my nose and down into my stomach. I am not looking forward to it, but I am sick of choking. I had Photopheresis treatment Tuesday and Wednesday, and I now begin getting those treatments once each month (still 2 days per treatment).

Salmonella

I was diagnosed with Salmonella today. I’ve been sick for almost a week now. I spent the day at the hospital on Tuesday. They did blood cultures, did a CBC, took a urine sample, and gave me fluids and magnesium. The following day I was diagnosed with a Urinary Tract Infection, and today’s diagnosis was the Salmonella. I’ve had to move around several other appointments because of this, and hopefully after I start new antibiotics today I will begin to feel better. Thankfully the fevers went away after Tuesday.

GoFundMe Campaign

I’ve set up a GoFundMe Campaign to raise funds for the medical needs that I can’t afford. Unfortunately not many things are getting better for me. Most things are on a steady decline.

My donations page has been updated, and I think the GoFundMe story summarizes things pretty well. Please share my GoFundMe story, and donate if you’re able to. Thanks!